Join us in striding toward a cure for cavernous malformation!
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27
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219
Donations
1
Recurring Donor
The "Strides to Cure CCM 30 in 30 Challenge" is an inspiring and empowering fundraising initiative designed to raise awareness and support for cavernous malformation research. Over the course of 30 days, participants commit to walking, running, biking, swimming, or rolling a total of 30 miles, taking strides towards a future where effective treatments and ultimately a cure for cavernous malformations (CCM) are a reality.
Cavernous malformation (CCM) is a cerebrovascular disease where leaky blood vessels form in the brain or spinal cord and bleed, leading to debilitating symptoms in an estimated 138,000 Americans. Patients with this diagnosis may suffer symptoms like migraines, seizures, and strokes, at any age. The only treatment is brain or spine surgery, which can lead to additional deficits.
This challenge not only serves as a powerful symbol of the journey many individuals and families navigate in dealing with CCM but also as a proactive means to foster community, solidarity, and hope. Participants are encouraged to share their progress, stories, and motivations across social media platforms, using a designated hashtag to connect with others in the CCM community and beyond. This visibility is vital in educating the public about CCM, amplifying the voices of those affected, and highlighting the importance of ongoing research.
FUNDRAISING is a key component of the challenge, with each participant or team setting a goal to raise funds through their network of friends, family, and colleagues. These funds go directly towards supporting cutting-edge research projects, patient support services and awareness campaigns orchestrated by the Alliance to Cure Cavernous Malformation. By providing essential resources to researchers and advocates, participants' efforts make a tangible difference in the quest to understand, treat, and ultimately cure Cavernous Malformations.
*Create your fundraiser by clicking "Start Fundraising" above. Personalize it by sharing your story and why you are "Striding to Cure CCM".
The "Strides to Cure CCM 30 Miles in 30 Days Challenge" is more than just a fundraising event; it's a movement. It unites individuals from all walks of life in action and purpose, creating a community of advocates and supporters who are dedicated to changing the landscape of CCM research and care. Whether individually or as part of a team, participants demonstrate that every step taken is a step closer to a cure, embodying the hope and resilience that define the CCM community.
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