Lisa and BioTrek Sailing's Charity of Choice image

Lisa and BioTrek Sailing's Charity of Choice

Support Alliance to Cure Cavernous Malformation

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$5,000 goal

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Support Lisa and BioTrek-sailing's Charity of Choice

Lisa has dedicated her career to finding cures for neurological diseases and would greatly appreciate any level of support from our BioTrek-sailing audience.

Please consider a donation to Alliance to Cure Cavernous Malformation, the only patient and research organization supporting those affected by cavernous malformation. A cavernous malformation is a raspberry-shaped abnormal blood vessel in the brain or spinal cord that can hemorrhage and cause strokes, seizures, disability, and even death in both children and adults. People with hereditary forms of the illness can develop many cavernous malformations in a lifetime. Currently, brain surgery is the only treatment. Alliance To Cure Cavernous Malformation is working with researchers to develop medications that will prevent hemorrhage and prevent the development of more lesions.

Funds will be used to support the Alliance To Cure Cavernous Malformation DNA and Tissue bank, a patient registry, an international scientific meeting, and the development of clinical centers of excellence. We are driving research toward a cure!