Judith Kogan

Judith Kogan's Fundraiser

We can cure Cavernous Angiomas together! image

We can cure Cavernous Angiomas together!

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$2,844 towards $5,000

Join me in supporting Eli and thousands of people with a cure for this rare disease.

Just about 4 years ago, then 4 year old Eli underwent a10 hour life-saving brain surgery to remove his second Cavernous Angioma. When he was first diagnosed at age 2, there was no cure for this rare type of vascular malformation found in the brain and spine. The only option to keep him alive was brain surgery to remove the Angioma, but surgery is not a cure, and sadly it was not a cure for Eli. In the coming weeks, I will share some details about Eli's heroic journey, but his story is his to tell. One day he will share it with you if he chooses.
Our family is committed to raising awareness about Angiomas and raising funds for a cure so that Eli does not ever need to have another brain surgery just to live. When we were thrown into this world of rare disease, a non-surgical treatment seemed so far away. A cure seemed completely out of realm of possibility. The exciting news is that clinical trials are happening now. A nonsurgical cure is expected by 2025, and a CURE is expected by 2030. The Alliance for a Cure leads the way with these medical and scientific advances.
What can you do? Come join us in Malibu on October 2, 2022 at the 8th Annual Malibu Angioma Walk. Registration is always free, so bring the whole family. If you want a T-shirt, then the registration fee is $35 with a T-shirt. It is always a fun way to start the day in Malibu with food, fun, games, a cool raffle, and raising awareness for a cause that will save lives like Eli's. We hope you will join us!