We can cure CCM!

Become part of the ANGIOMA ALLIANCE

Just a small donation will go a long way to helping me meet my goal for the ANGIOMA ALLIANCE.

When I was finishing up my junior of college in May 2025, I was rushed to the ER due to stroke-like symptoms. I was then transferred to the ICU in a hospital specializing in neuro care, 7 hours away from home. After many tests and scans, these symptoms were later confirmed to be the accumulation of multiple brain bleeds over the course of 3+ years, due to a ruptured cavernous malformation in my right frontal lobe. After spending a few weeks in and out of the ICU, I was able to have an angioplasty and craniotomy to successfully remove the CCM in June 2025. Thanks to my amazing team of doctors at UVA and Northern Westchester Hospital, I was able to return back to school in the fall, and graduate with my Bachelor's degree this past May, exactly 1 year since my cavernoma was discovered.

Before last May, I would randomly get very sick and had been to multiple doctors to try and figure out my condition. Because of the rarity of CCM affecting 1 in 500 people, and the rarity of it rupturing at my age, my brain was never considered as a potential cause for my random illnesses. Only when I thought I was having a stroke did the doctors find the underlying cause of my mystery illness. Together, advocating for CCM and raising awareness can bring attention to this condition and help find a cure for the thousands of people still living with their cavernoma. I'm so lucky to say that I am cavernoma free, and want to help others to be able to say the same thing.

Please join me this June in participating in Strides to Cure or by donating to my fundraiser! Let's make the world #cavernomore!!