Accelerating the Cure for Cavernous Malformations image

Accelerating the Cure for Cavernous Malformations

$41,675 raised

$200,000 goal

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Money raised benefits the non-profit organization The Alliance to Cure Cavernous Malformations, the only patient and research organization supporting those affected by cerebral cavernous malformations.

A cavernous malformation is a raspberry-shaped abnormal blood vessel in the brain and spinal cord that can hemorrhage and cause strokes and seizures in both children and adults. People with hereditary forms of the illness can develop many cavernous malformations in a lifetime. Currently, brain or spinal cord surgery is the only treatment. The Alliance to Cure Cavernous Malformations is working with researchers to develop medications that will prevent hemorrhage, prevent the development of more lesions, and, ultimately, make existing lesions disappear.

Funds raised will be used to support research grants, the Alliance's DNA and Tissue bank, a patient registry, the annual international scientific meeting, and the development of clinical Centers of Excellence. We are accelerating the cure for CCM!