International CCM Scientific Meeting (Nov. 6-7) & CCM Center of Excellence and Clinical Center Faculty Meeting (Nov. 7)

The 21st Annual International CCM Scientific Meeting (Nov. 6-7) is a two-day event for international stakeholders to assemble, share, and discuss the latest CCM research data. Alliance to Cure Cavernous Malformation hosts this annual meeting to facilitate scientific progress and collaborations.

The 1st Annual CCM Center of Excellence and CCM Clinical Center Faculty Meeting (Nov. 7) is an opportunity for healthcare providers to gather, share CCM care best practices, and discuss CCM care improvement. Note: Clinical Meeting attendees are invited to join Day 1 of the Scientific Meeting on Nov. 6.

Hotel Reservations: click here for our Group Rate

Schedule

CCM Scientific Meeting (Thursday, Nov. 6 - Friday, Nov. 7): Day 1 begins at 8:30 a.m. and is followed by an afternoon poster session/reception and special dinner. Day 2 begins with a keynote speech followed by a plenary through 3:30 p.m.

CCM Center of Excellence and Clinical Center Faculty Meeting (Friday, Nov. 7): A keynote speech followed by a joint session with patients to hear about the clinical guidelines update and discuss patient/clinician communication, and an afternoon work session discussing clinic best practices/metrics and inter-clinic communication. Because of its highly interactive nature, this meeting is in-person only.

Who May Attend?

CCM Scientific Meeting: Attendance at the annual CCM Scientific Meeting is open for those with active CCM research programs (principal investigators, postdoctoral fellows, and students), clinical practice, drug development, and CCM advocacy (e.g., Alliance to Cure Cavernous Malformation Board members). Officials from the National Institutes of Health, the Food and Drug Administration, and international funding agencies are also encouraged to attend. Upon registration, attendees will complete an eligibility questionnaire. Final attendance eligibility determinations are subject to a decision by the Organizing Committee. To request a determination, please contact Connie Lee at clee@alliancetocure.org.

Attendance is limited to the above-described eligibility criteria to protect the confidentiality of unpublished data. Therefore, patients, care providers, and other family members (even those with medical or scientific training) cannot attend scientific sessions.

CCM Center of Excellence and Clinical Center Faculty Meeting: Healthcare providers attending the 1st Annual CCM Center of Excellence and Clinical Center Faculty Meeting represent Alliance to Cure's recognized CCM Centers of Excellence and Clinical Center network and hospitals with relatively high volumes of CCM patients. For more information, please contact Katie Garbarini, Clinical Programs Director, at katie@alliancetocure.org.

For questions about meeting registrations, meals, or hotel reservations, please email lindsay@alliancetocure.org.

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