Rhythms of Hope: Concerts for Cavernous Malformation
September 7, 2024 @ 5:00PM — 8:00PM Eastern Time (US & Canada) Add to Calendar
Join us for Rhythms of Hope: Concerts for Cavernous Malformation, an inspiring coast to coast event that combines the power of music with community spirit to raise awareness and support for those affected by cavernous malformations. This event brings together talented musicians and passionate advocates for a series of virtual performances accessible to a global audience, as well as multiple in-person benefit concerts in various communities. Experience the warmth of our in-person gatherings while contributing to a meaningful cause. Come enjoy live music, connect with others, and help make a difference!
Imagine living each day with the fear that a sudden seizure or stroke could strike at any moment. This is the reality for over 140,000 people in the U.S. suffering from cavernous malformation, a debilitating condition caused by clusters of abnormal blood vessels in the brain and spinal cord. For many, there are no effective treatments, and awareness is tragically low.
The Alliance to Cure Cavernous Malformation is fighting to change this. We’re funding cutting-edge research to discover new treatments and find a cure within the next 5 years, providing vital support to patients and families, and launching awareness campaigns to improve early diagnosis and care. But we need your help. Your donation today can bring us one step closer to breakthroughs that will transform lives and bring hope to those living in constant fear.
Please join us in this urgent fight—every moment, every dollar counts. Together, we can make a difference now.
This is Elan 4 years old, hospitalized due to sudden dizziness, severe headache, and left-sided weakness. Because there are no treatment options, he was scheduled for brain surgery the next day.
While his surgery was successful, he isn't out of the woods. Elan lives with several cavernous malformations scattered throughout his brain that could bleed at any time. There's no way of knowing what the effects of another bleed could have on his future.
"While Elan is 11 and doing well, the thought that we could send him off to college in a few years without the added worry of this illness means everything to us." -Mom
The need for better treatments and a cure is URGENT!
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