2024 CCM Family Weekend

June 28, 2024 @ 12:00PM — July 1, 2024 @ 12:00PM Eastern Time (US & Canada) Add to Calendar

Silver Bay Bay YMCA: 87 Silver Bay Rd Silver Bay, NY 12874 Get Directions

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Join us for our 1st ever cavernous malformation family weekend in Silver Bay, NY!

Family Weekend is an opportunity you won't want to miss. It's a chance to connect with a caring community of individuals who understand the challenges of living with cavernous malformation, offering invaluable support. In addition to finding a sense of belonging, you'll have the chance to recharge, both mentally and emotionally, and gain crucial knowledge and resources. Register early to reserve your spot!

In 2024, thanks to the support of a generous donor, the Alliance to Cure will host its first Family
Weekend. Unlike our patient conferences, which focus on education, our Family Weekend will focus on
fun, laughter, and community.

AGENDA

When: June 28-July 1, 2024 (3 nights, 4 days)
Where: Silver Bay YMCA Conference and Retreat Center on Lake George in the Adirondack Mountains of upstate New York. Silver Bay YMCA camp offers hotel-like lodging with individual family rooms and a 700-acre waterfront campus. All meals and activities are provided.
Activities: You can look forward to boating, swimming, nature walks, rock wall climbing, crafts, music, games, campfires, archery, pickleball, and more. We’ll have planned group activities and time for you to relax. Activities Available
Who: This weekend is for everyone! While we want our children to meet and make special memories together, we encourage anyone interested in joining our community to attend. Most activities will have an adaptive option, and all activities are optional to accommodate the need for rest.
Extras: Alliance to Cure staff will attend and host discussion groups and information sessions. Let us know which topics interest you, and we’ll try to make them happen. We also plan an adult self-care evening while the children enjoy a movie night.
Getting Around: There are a limited number of accessible rooms available. Please indicate on your registration if you need an accessible room. The camp itself is set up in such a way that everyone should be able to get around easily. The dining room and meeting room are wheelchair accessible. Most areas have paved roads and sidewalks, and the camp offers golf cart assistance to farther out spots like the beach and boathouse. The dining staff can work with all dietary restrictions and allergies and plan a vegetarian option.

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*Family Weekend is heavily subsidized to ensure affordability for all. If you're able, we welcome and appreciate any extra donations, which will directly assist more families in attending and enjoying this time together. Your generosity is greatly valued and helps us maintain our commitment to inclusivity. In the event you need to cancel, registration fees are non-refundable after April 1st, 2024.

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