2022 Alliance to Cure Cavernous Malformation Patient Conference

November 18, 2022 @ 8:00AM — November 19, 2022 @ 3:00PM Eastern Time (US & Canada) Add to Calendar

Washington Duke Inn and Golf Club: 3001 Cameron Blvd Durham, NC 27705 Get Directions

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An opportunity to meet and learn from the experts

Please join us for two days of presentations and conversations about cavernous malformation research and treatment, a tour of the Duke lab, and more. This meeting is happening concurrently with the International CCM Scientific Meeting. PLEASE READ OUR COVID PROTOCOL BEFORE REGISTERING. YOUR REGISTRATION INDICATES YOUR WILLINGNESS TO COMPLY.

COVID PROTOCOLS

Highlights this year include:

  • Friday breakfast and lunch with researchers, allowing you to ask questions and share your personal story with those working toward a cure.
  • Conference keynote speech by Dr. Douglas Marchuk with remarks by Dr. Issam Awad. This session is jointly held with the scientists.
  • Tours of the Duke lab for those who are interested.
  • Presentations by experts. These sessions are separate from the scientific meeting so that material can be presented in lay language and attendees can ask questions.
  • Discussion groups and social time with other affected members.
  • Opportunity to enroll in research studies.
  • Opportunity to view the research posters presented at the scientific meeting.

FULL AGENDA

We will not have separate children's programming at this meeting. Our July 2023 event in Miami will include a children's program.

Your registration will be refunded if our meeting is canceled because of the pandemic.

To attend, we ask that you bring proof of vaccination and plan to wear a mask. We will have masks and COVID antigen tests available. At this time, we plan to have meals together indoors, but this may change depending on conditions at the time of the meeting. With your safety in mind, we will keep you apprised of any changes.

Support us with a donation.